Welcome
to MEBI 591: Designing Online
Technology for Patient Self Management
Tuesdays, 11:00 - 11:50 a.m.,
September 24 - December 7
Health Sciences, Room E-212
Facilitator: Jina Huh, PhD
- NLM Postdoctoral Fellow
Faculty Sponsor: Wanda Pratt, PhD
Email for questions: jinahuh@uw.edu
Overview
Welcome to
MEBI 591. In this course, we will explore designing online technologies
for supporting patient self-management. Our goals are to understand:
(1) health information needs that emerge during patient
self-management, (2) the ways in which current online technologies help
(or not help) such information needs to be fulfilled, and (3) what
future online technologies may be able to help provide safe and high
quality information support for patients.
Course
Description
Most chronic illness management happens at home by the patients
themselves and their caregivers. A national survey in July 2012 by the
Pew Research Center finds that patients and caregivers increasingly use
the Internet to find and share information about symptoms, treatments,
and support. In this seminar, we explore designing online technologies
for patient self-management. We will explore patients’ information
needs during self-management, how such needs are supported by the
existing health care system, how current online information
technologies (e.g., online patient communities, games, mobile apps,
social media) attempt to support such information needs, and how future
online technologies should be designed to support patient
self-management.
Course structure
The course will run
on a journal club format. We expect each participant to select and
present a paper during one of the course sessions. Some articles will
be theory oriented, while others will explore design and evaluations of
existing information technologies. By using this format, we encourage
collective learning to occur, where the course participants contribute
their expertise on the topics they are most interested in while
learning from others on the topics that they have less experiences in.
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Week 1: September 25, 2012
1. Understand the overall aim of the course
2. Introduce each participant's interests for the seminar
3. Briefly discuss a JMIR article:
Internet-based Patient Self-care: The Next Generation of Health Care Delivery
by June Forkner-Dunn
J Med Internet Res. 2003 Apr-Jun; 5(2): e8. Published online 2003 May 15. doi: 10.2196/jmir.5.2.e8
4. Brainstorm whether other themes should be added or replaced
5. Participants sign up for the weeks they would like to take charge of
Week 2: October 2, 2012
Patient self-management: What is patient self-management, and what are critical elements to supporting patient self-management?
Facilitator: Shomir Chauduri
Readings:
Clark NM, Becker MH, Janz NK, Lorig K, Rakowski W, Anderson L.
Self-Management of Chronic Disease by Older Adults: A Review and
Questions for Research. Journal of Aging and Health. 1991 Feb
1;3(1):3–27. Available from:
http://jah.sagepub.com/cgi/content/long/3/1/3 pdf
McManus RJ, Mant J, Bray
EP, Holder R, Jones MI, Greenfield S, et al. Telemonitoring and
self-management in the control of hypertension (TASMINH2): a randomised
controlled trial. The Lancet [Internet]. 2010 Jul 17;376(9736):163–72.
Available from:
http://linkinghub.elsevier.com/retrieve/pii/S0140673610609646 pdf
Week 3: October 9, 2012
Technologies that support
improving self-efficacy: What is self-efficacy, and what are existing
technologies that improve self-efficacy?
Facilitators: Katherine Blondon, Eun Kyung Choe
Readings: Bandura A. Health promotion from the perspective of social
cognitive theory. Psychology & Health [Internet]. Routledge; 1998
Jul 1;13(4):623–49. Available from:
http://dx.doi.org/10.1080/08870449808407422 pdf
Week 4: October 16, 2012
Online health communities and support groups
Facilitators: Alan Kalet, Hyunggu Jung
Readings:
Johnson GJ, Ambrose PJ. Neo-Tribes: The Power and Potential of Online
Communities in Health Care. Communications of the ACM.
2006;49(1):107–13. pdf
Frost J, Massagli M. PatientsLikeMe the case for a data-centered
patient community and how ALS patients use the community to inform
treatment decisions and manage pulmonary health. Chronic respiratory
disease [Internet]. 2009 Jan [cited 2012 Oct 4];6(4):225–9. Available
from: http://www.ncbi.nlm.nih.gov/pubmed/19858352 pdf
Week 5: October 23, 2012
Online technologies in specialized population: Elderly and ethnic groups
Facilitators: Robert Racadio, and Hannah Mandel
Readings:
Kreps, G. Disseminating
relevant health information to underserved audiences: implications of
the Digital Divide Pilot Projects. Journal of the Medical Library
Association, (2005) pdf
Shaw, B. How Underserved Breast Cancer Patients Use and Benefit From
eHealth Programs: Implications for Closing the Digital Divide. American
Behavioral Scientist 49, 6 (2006), 823–834 pdf
Week 6: October 30, 2012
Effect of online technology on health care outcomes
Facilitators: Albert Park, Amanda Lazar
Readings:
Eysenbach G, Powell J, Englesakis M, et al. Health related virtual
communities and electronic support groups: systematic review of the
effects of online peer to peer interactions. BMJ (Clinical research ed)
2004;328:1166. pdf
Week 7: November 6, 2012: Break due to AMIA
Week 8: November 13, 2012
Effect of online technology on the patient-clinician relationship
Facilitators: Ken Jelinek, Leslie Liu, Dean Poppe
Readings:
Primary--
Dedding C, van Doorn R, Winkler L, et al. How will e-health affect
patient participation in the clinic? A review of e-health studies and
the current evidence for changes in the relationship between medical
professionals and patients. Social science & medicine (1982)
2011;72:49–53. pdf
Supplementary--
Erdem SA, Harrison-Walker LJ. The role of the Internet in
physician–patient relationships: The issue of trust. Business Horizons
2006;49:387–93. pdf
Mo PKH, Malik SH, Coulson NS. Gender differences in computer-mediated
communication: a systematic literature review of online health-related
support groups. Patient education and counseling 2009;75:16–24. pdf
Week 9: November 20, 2012
Patient self-management using e-monitoring
Faciliator: Ted McCarthy, Katie Kuksenok
Readings:
Primary--
Klasnja P, Pratt W. Healthcare in the pocket: mapping the space of
mobile-phone health interventions. Journal of biomedical informatics
2012;45:184–98. pdf
Supplementary--
Le S, Shafer PO, Bartfeld E, et al. An online diary for tracking epilepsy. Epilepsy & behavior : E&B 2011;22:705–9. pdf
Vervloet M, van Dijk L, Santen-Reestman J, et al. SMS reminders improve
adherence to oral medication in type 2 diabetes patients who are real
time electronically monitored. International journal of medical
informatics 2012;81:594–604. pdf
Purpura S, Schwanda V, Williams K, et al. Fit4life. In: Proceedings of
the 2011 annual conference on Human factors in computing systems -
CHI ’11. New York, New York, USA: : ACM Press 2011. 423. pdf
Week 10: November 27, 2012
Online technology for
patient self-management: What are existing online technologies that
have supported patient self-management? What needs to be improved?
Facilitator: Logan Kendall
Readings:
Week 11: December 4, 2012
Wrap up, summary, and brainstorm design ideas for future online technologies for patient self-management.